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Support for men with prostate cancer

Talking to other men and caregivers facing the same challenges can be immensely helpful. Below is a list of organizations that provide resources and run support groups for men living with prostate cancer.

Get the support you need

Advocacy

Prostate cancer advocacy groups help you and your loved ones navigate the cancer landscape. They can connect you with medical professionals, support groups, and financial assistance. Advocacy groups also raise funds for advancing treatment options.

Prostate Cancer Research Institute
PCRI.org


Prostate Cancer Foundation
PCF.org
1-800-757-CURE (2873)

ZERO Prostate Cancer
ZeroCancer.org
1-844-244-1309

Education

Becoming your own advocate means learning as much as you can about prostate cancer. The following organizations will help you learn about your condition, your treatment options, and how you can support your medical care through healthy lifestyle choices.

American Cancer Society®
Cancer.org
1-800-227-2345

Blue Cure®
BlueCure.org

 

Men’s Health Network®
MensHealthNetwork.org
1-202-543-MHN-1 (6461)ext 101

 

Urology Care Foundation™​
UrologyHealth.org
1-800-828-7866

 

Prostate Health Education Network, Inc.​​
ProstateHealthEd.org

Financial assistance

You may be nervous about the financial aspects of being diagnosed with cancer, but there are many organizations dedicated to helping you with those costs. Speak with the organizations below to see what type of assistance they may be able to offer. You should also check with your doctor’s office to see if other assistance is available.

This list is provided for informational purposes only and does not indicate an endorsement or sponsorship.

BenefitsCheckUp®​

CFAC: Cancer Financial Assistance Coalition

CancerCare® Co-Payment Assistance Foundation

HealthWell Foundation®

Medicine Assistance Tool

Patient Advocate Foundation

Financial toxicity

Tolmar is dedicated to making affordable treatment with ELIGARD® a reality for prostate cancer patients. Many patients with cancer face some degree of financial hardship and illness-related money troubles. With ELIGARD, patients can feel confident in the affordability of treatment and that cost burden is kept as low as possible

  • Consistently has been one of the lowest wholesale acquisition costs (WACs) in the GnRH market
  • No WAC increase in more than 9 years

Learn about financial toxicity and ways to help navigate this burden of care

Learn more about prostate cancer and ELIGARD

Explore our resources to learn more about prostate cancer and whether ELIGARD may be right for you

IncreMENtal

IncreMENtal is the only habit-building program to help you on your ADT journey. It may help you build a healthier lifestyle by adding small, simple actions that add up over time to help you overcome your ADT challenges.

Prostate Cancer 360

PC360 assists you on your ADT journey by providing tips to manage side effects, information on healthy diet and exercise, and lists of assessments you can expect to complete before and during treatment.

Image of the Getting Started on ELIGARD guide

Understanding ELIGARD

What you need to know about treatment with ELIGARD.
Image of Prostate Cancer and You guide

Prostate Cancer and You guide

A guide for patients or caregivers that explains what to expect during ADT.

Common terms

The following is a list of some common terms your doctor may use when discussing treatment:

Active surveillance

Close monitoring of prostate cancer by a physician instead of immediate treatment.

ADT (androgen deprivation therapy)

ADT, a type of hormone therapy, is the use of medicine to reduce male hormones causing prostate cancer growth. Otherwise known as chemical castration.

Advanced prostate cancer

When prostate cancer spreads beyond the prostate gland to other parts of the body.

Atrophy

Wasting away of tissue in the body.

Biopsy

The removal of a small piece of tissue, which is then examined under a microscope.

Bladder

An organ that holds urine.

Cancer

A general term for a large group of diseases in which abnormal cells grow and spread throughout the body.

Digital rectal exam (DRE)

A procedure in which the doctor inserts a gloved finger into the rectum to examine the prostate gland for enlargement or tenderness and signs of cancer.

Erectile dysfunction

The inability to have or maintain an erection, also called impotence.

Fatigue

Extreme tiredness.

Financial toxicity

Challenges caused by the cost of medical care.

Gleason score

A score (2-10) that helps doctors determine how aggressive prostate cancer is.

Hormone therapy

Hormone therapy is any medicine that changes your hormones to improve your health.

Hormones

Chemicals released by glands into the bloodstream to produce specific effects on organs and tissues.

Hot flashes

Rushes of warmth in the face, neck, upper chest, and back lasting for a few seconds to an hour. They may also cause increased sweating.

Impotence

The inability to have or maintain an erection, also known as erectile dysfunction.

Incontinence

The inability to control urine flow.

Infertility

The inability to conceive children.

Laparoscopic radical prostatectomy (LRP)

Prostate-removal surgery using several small incisions. (See “Prostatectomy.”)

Leuprolide acetate

Therapeutic active pharmaceutical ingredient in ELIGARD, also called the generic.

Luteinizing hormone–releasing hormone (LHRH) agonists

Drugs that lower the amount of testosterone made by the testicles. Otherwise known as gonadotropin-releasing hormone (GnRH) agonists.

Lymph nodes

Small glands that help defend the body against harmful foreign particles.

Male hormones

Male hormones, also called androgens, are responsible for traits like increased muscle mass and bone density, hair growth on the face and body, and the voice getting deeper during puberty. The main male hormone is testosterone. Because testosterone can cause prostate cancer to progress, ADT blocks its production in the testicles.

Orchiectomy

Surgical removal of the testicles, also called surgical castration.

Prostate cancer

Cancer of the prostate gland. Prostate cancer can also spread to other parts of the body, such as lymph nodes, bone, and seminal vesicles.

Prostate gland

A walnut-sized gland that surrounds the male urethra, located between the bladder and the penis.

Prostate-specific antigen (PSA) blood test

A blood test used to help detect and follow the course of prostate cancer.

Prostatectomy

Surgery to remove the prostate (see “Radical retropubic prostatectomy,” “Laparoscopic radical prostatectomy,” and “Robot-assisted LRP”).

Radiation therapy

The use of high-energy rays to kill cancer cells.

Radical retropubic prostatectomy

Surgery to remove the entire prostate gland along with nearby tissue, such as the seminal vesicles (see “Prostatectomy”).

Rectum

The final section of the intestines that ends at the anus.

Robotic-assisted LRP

A laparoscopic prostate-removal surgery that employs robotic arms controlled by a surgeon. (See “Laparoscopic prostatectomy” and “Prostatectomy.”)

Semen

The thick, whitish fluid released through the penis during orgasm. The prostate makes substances that are present in semen.

Seminal vesicles

A pair of glands near the prostate that add substances to semen.

Sperm

Male reproductive cells produced in the testicles and found in semen.

Staging

Determining the extent and severity of a disease in a person.

Subcutaneous

Situated or applied under the skin.

Testicles

The pair of egg-shaped glands contained in the scrotum. They produce sperm and testosterone.

Testicular atrophy 

A condition in which the testicles slowly shrink. Testicular atrophy can be a side effect of lower testosterone due to ADT.

Testosterone

A male sex hormone produced mostly by the testicles, although a small amount is made by the adrenal glands.

Transrectal ultrasound (TRUS)

The use of ultrasound waves to visualize the prostate.

Urethra

The duct that carries urine from the bladder.

Wholesale acquisition cost (WAC)

The price a hospital, pharmacy, or other distributor pays to purchase a drug from its manufacturer. The WAC helps to determine how much consumers pay for medicine.

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